General Duke Posted July 29, 2006 Dear fellow members. I have been contacted by a Somali organisation based in Mogadishu named IFTIN . They help women and children. They have brought to my attention the case of Hibaq Abdi Ali she is nine years old. She was born with an unknown illness, which the local medical authorities could not diagnose. She sufferes from a severe skin disorder, and with age has become worse. Lately it has started to affect her face covering her eyes and making her partially blind. She is the youngest of a family of 10, who suffered in the war. Her father left her when she was born because of the way she looked. Her mother is poor and unable to help her. I need you to help me in getting her case across to all relevent bodies that you may know or are familiar with.. Any organisation, telephone, websites any, kindly forward it on this thread... Can anyone forward me the contact of Mr Doloowa in Australia? Everyone please do your bit, I will forward more information regarding her case including pictures.. Do not hesitate to contact me on this web site.. Many thanks... Quote Share this post Link to post Share on other sites
General Duke Posted August 2, 2006 Here is the pic of the child. Please help.. Quote Share this post Link to post Share on other sites
Som@li Posted September 30, 2006 Essa Farah works for SBS radio... their contacts.. Sydney SBS Radio Sydney Locked Bag 028 Crows Nest NSW 1585 Australia email: somali.program@sbs.com.au tel > (02) 9430 2828 fax > (02) 9438 1114 Melbourne SBS Radio Melbourne PO Box 294 South Melbourne VIC 3205 Australia email: somali.program@sbs.com.au tel > (03) 9949 2121 fax > (03) 9949 2385 Issa Farah landing at Jowhar Airport Quote Share this post Link to post Share on other sites
Mowgli Posted September 30, 2006 The child looks like she has a very rare form of Ichthyosis. Most of the forms are genetic, but some forms are also acquired. To put it simply, the lack of moisture in the skin causes abnormal fish like scaling of the skin. unfortunately, there is no cure for this disease, therefore the treatment options avaliable are only a way of managing symptoms....most of the treatment avaliable is aimed at keeping the skin moist. Quote Share this post Link to post Share on other sites
General Duke Posted September 30, 2006 ^^^Thanks Idil, and Dabshid. Alhamdulilah we have made some good strides to getting the right support for Hibaq. I will keep everyone posted.. Quote Share this post Link to post Share on other sites
Nehanda Posted October 3, 2006 Duke Any progress with the case? Does the family need financial support, if so how could we contribute? Quote Share this post Link to post Share on other sites
General Duke Posted October 4, 2006 ^^Alhamdulilah there has been some progress. Yes we are thinking of some sort of fund raising activity. I will keep you posted insha Allah. Quote Share this post Link to post Share on other sites